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Kadija Ferryman is a cultural anthropologist who studies the social, cultural, and ethical implications of health information technologies. Specifically, her research examines how genomics, digital medical records, artificial intelligence, and […]
Rua M. Williams is an assistant professor in the User Experience Design program at Purdue University. They study interactions between technology design, computing research practices, and Disability Justice. Williams deploys […]
Amelia Gibson is an associate professor at the School of Information and Library Science at the University of North Carolina at Chapel Hill. Her primary research interests focus on the […]
The governance of rights is a complex project of exercising ethical discretion in a systemically unethical society. This paper troubles the efficacy of rights as governable by exposing tensions within […]
The Combating Autism Act of 2006 and its reauthorization in 2014 produced unprecedented interest in autism research. Computer Science researchers have devoted considerable attention to applying wearable technologies to existing […]
For parents of children with an Autism spectrum disorder (ASD), high quality, easily accessible information and a strong peer network can be the key to raising a happy, healthy child, […]
This quasi-systematic review uses a critical disability framework to assess definitions of disability, use of critical disability approaches, and hierarchies of credibility in LIS research between 1978 and 2018. We […]
This article outlines a constructivist grounded theory (Charmaz, 2014) study of information poverty among a group of mothers of individuals with Down syndrome and/or Autism Spectrum Disorders (ASD) from a […]
Artificial intelligence and brain–computer interfaces must respect and preserve people’s privacy, identity, agency and equality, say Rafael Yuste, Sara Goering and colleagues.